Ingrid de Groot - Myositis Patient Partner

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论文共 35 篇作者统计合作学者相似作者

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The Impact of Pain on Daily Activities in Patients with Idiopathic Inflammatory Myopathies: Report from the OMERACT Myositis Working Group

Didem Saygin,Helene Alexanderson,Dana Direnzo,Joost Raaphorst,Marianne de Visser,Dianxu Ren,Malin Regardt,Ingrid de Groot,Catherine Sarver,Ju Yeon Kim,Karin Lodin,Kelly Beer,Merrilee Needham,Jin Kyun Park,Lisa Christopher-Stine,Christopher A. Mecoli

SEMINARS IN ARTHRITIS AND RHEUMATISM (2024)

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Mental health in paediatric and adult myositis-related diseases: current state of research, interventions, and future steps from the MIHRA Psychological Impact Scientific Working Group

Aviya Lanis,Helene Alexanderson,Kaveh Ardalan, Suzanne Edison, Christopher D Graham,Ingrid de Groot,Latika Gupta,Susan Kim,Andrea M Knight,Linda Kobert,Polly Livermore,Christian Lood,Clarissa Pilkington,Malin Regardt,Tamar B Rubinstein,Susan Shenoi,Luke Turnier, Nicole B M Voet,Dawn M Wahezi,Lesley Ann Saketkoo

Clinical and experimental rheumatologyno. 2 (2024): 413-424

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Patient-Reported Outcome Measures in Neuromuscular Diseases: A Scoping Review

Nicoline Voet, Ronne Pater,Joana Garmendia,Andone Sistiaga,Garazi Labayru,Benjamin Gallais,Ingrid de Groot,Samar Muslemani,Cynthia Gagnon,Christopher Graham

Journal of neuromuscular diseasespp.1-11, (2024)

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Construct Validity of PROMIS Pain Interference, Fatigue, and Physical Function As Patient-Reported Outcomes in Adults with Idiopathic Inflammatory Myopathies: an International Study from the OMERACT Myositis Working Group

Ellen Romich,Didem Saygin,Dana DiRenzo,Christopher A. Mecoli,Ingrid de Groot, Karin Lodin,Malin Regardt,Catherine Sarver, Ju Yeon Kim,Jin Kyun Park, Kelly Beer,Merrilee Needham,Helene Alexanderson,Lisa Christopher-Stine,Marianne de Visser,Joost Raaphorst

SEMINARS IN ARTHRITIS AND RHEUMATISM (2024)

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Collaborative research in myositis-related disorders: MIHRA, a global shared community model

Lesley Ann Saketkoo,Julie J Paik,Helene Alexanderson,Mazen M Dimachkie,Floranne C Ernste,Elie Naddaf, Barbara Shafranski,Latika Gupta,Christopher A Mecoli,Didem Saygin,Jemima Albayda,Pari Basharat,Jessica A Day,Antonia Valenzuela, Rachel Bromley,Ingrid de Groot, Suzanne E Edison,Aviya Lanis,Christian Lood,Malin Regardt,Belina Y Yi, Alejandro C Benitez,Hector Chinoy,Lisa Christopher-Stine,David A Isenberg,Bianca Lang,Chester V Oddis, Annet van Royen,Jiri Vencovsky,Victoria P Werth,Pedro M Machado

Clinical and experimental rheumatologyno. 2 (2024): 207-212

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Dutch myositis working group (dmwg)

Ingrid De Groot

CLINICAL AND EXPERIMENTAL RHEUMATOLOGYno. 2 (2023): 534-535

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Imacs icers guidance for quality clinical trial design of exercise in idiopathic inflammatory myopathies (iims)

Helene Alexanderson,Ingrid De Groot,Lesley-Ann Saketkoo

CLINICAL AND EXPERIMENTAL RHEUMATOLOGYno. 2 (2023): 531-531

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Patient Research Partner As an Equal Member of the Research Team: A Personal Experience of the OMERACT Myositis Working Group

Ingrid de Groot

INDIAN JOURNAL OF RHEUMATOLOGYno. SUPPL 1 (2023): S88-S91

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