基本信息
浏览量:0
职业迁徙
个人简介
Research Interests
I am a PhD candidate in the Marie Curie Palliative Care Research Department at University College London, working on practices of care and medical decision-making among patients, families and practitioners. My dissertation is an ethnography of care and treatment for people living with brain tumours. Brain tumour communities are undergoing radical change with the recent introduction of molecular biomarkers to diagnosis. These markers hold much promise for those affected given their affordance of more precise diagnostic, prognostic and predictive information and in invigorating a research agenda based around tailored treatments. Yet their introduction remains contested within clinical communities, sometimes complicating diagnosis and decision-making and giving rise to new dilemmas for patients and their families. By studying this moment ethnographically, I explore how patients, families and a range of practitioners in the UK navigate complex treatment decisions amid an unpredictable disease and shifting terrain of care. I draw attention to how communities manage uncertainty, how patients and families understand and weigh information, how they approach standard care and experimental treatments at different points of their disease, and how the particular features of brain tumours intervene in people's lives. I am funded by a UCL IMPACT studentship and a Yale UCL collaborative exchange programme scholarship.
Research interests: brain tumours; chronic disease; oncology; end of life and palliative care; medical knowledge(s); diagnosis; medical decision-making; patient and public engagement; ethnography; science and technology studies; UK
I am a PhD candidate in the Marie Curie Palliative Care Research Department at University College London, working on practices of care and medical decision-making among patients, families and practitioners. My dissertation is an ethnography of care and treatment for people living with brain tumours. Brain tumour communities are undergoing radical change with the recent introduction of molecular biomarkers to diagnosis. These markers hold much promise for those affected given their affordance of more precise diagnostic, prognostic and predictive information and in invigorating a research agenda based around tailored treatments. Yet their introduction remains contested within clinical communities, sometimes complicating diagnosis and decision-making and giving rise to new dilemmas for patients and their families. By studying this moment ethnographically, I explore how patients, families and a range of practitioners in the UK navigate complex treatment decisions amid an unpredictable disease and shifting terrain of care. I draw attention to how communities manage uncertainty, how patients and families understand and weigh information, how they approach standard care and experimental treatments at different points of their disease, and how the particular features of brain tumours intervene in people's lives. I am funded by a UCL IMPACT studentship and a Yale UCL collaborative exchange programme scholarship.
Research interests: brain tumours; chronic disease; oncology; end of life and palliative care; medical knowledge(s); diagnosis; medical decision-making; patient and public engagement; ethnography; science and technology studies; UK
研究兴趣
论文共 21 篇作者统计合作学者相似作者
按年份排序按引用量排序主题筛选期刊级别筛选合作者筛选合作机构筛选
时间
引用量
主题
期刊级别
合作者
合作机构
IMPERMANENCE: Exploring continuous Change across Culturespp.183-204, (2022)
引用0浏览0引用
0
0
(Un)timely CrisesPalgrave Studies in Globalization, Culture and Societypp.13-21, (2021)
Wellcome Open Research (2021)
引用0浏览0引用
0
0
Wellcome Open Research (2020)
Immobility and Medicinepp.251-271, (2020)
加载更多
作者统计
合作学者
合作机构
D-Core
- 合作者
- 学生
- 导师
数据免责声明
页面数据均来自互联网公开来源、合作出版商和通过AI技术自动分析结果,我们不对页面数据的有效性、准确性、正确性、可靠性、完整性和及时性做出任何承诺和保证。若有疑问,可以通过电子邮件方式联系我们:report@aminer.cn