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Patient-advocate-led Global Coalition Adapting Fit-for-purpose Outcomes Measures to Assure Meaningful Inclusion of DEEs in Clinical Trials.

JayEtta Hecker,Gabrielle Conecker,Chere Chapman,Rebecca Hommer,Natasha N Ludwig,Gunes Sevinc, Sara Te,Mary Wojnaroski,Jenny Downs,Anne T Berg

Therapeutic advances in rare disease（2024）

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