Chrome Extension
WeChat Mini Program
Use on ChatGLM
VIPCreated with Sketch.

Friedreich Ataxia Caregiver-Reported Health Index

Jamison Seabury,Anika Varma,Jennifer Weinstein,Spencer J. Rosero,Charlotte Engebrecht,Shaweta Khosa,Christine Zizzi,Ellen S. Wagner,Danae Alexandrou, Brittany L. Cohen,Nuran Dilek,John M. Heatwole,David R. Lynch,Courtney C. Park,McKenzie Wells, S.H. Subramony,Chad R. Heatwole

Neurology Clinical Practice（2024）

Cited 0|Views9
No score
Abstract
The Friedreich ataxia (FRDA) scientific community needs access to patient-centered outcome measures that satisfy regulatory guidelines and are capable of tracking clinically meaningful changes in FRDA disease burden. The objective of this research was to develop a novel, disease-specific caregiver-reported outcome measure for use in FRDA research and clinical care.
More
Translated text
AI Read Science
Must-Reading Tree
Example
Generate MRT to find the research sequence of this paper
Chat Paper
Summary is being generated by the instructions you defined