Self-Care Application for Rheumatoid Arthritis: Identifying Key Data Elements

Introduction: Rheumatoid arthritis is a systemic, chronic autoimmune disease that affects the joints, and limited mobility. The disease is progressive and can significantly impact a patient's quality of life. Today, mobile applications have the potential to address specific health needs and provide therapeutic interventions. The initial stage of constructing and advancing a healthcare information system involves the utilization of a minimum data set, which comprises essential and standardized data components aimed at capturing and overseeing patient care. This study aims to identify key components for a mobile-based self-care application for patients with rheumatoid arthritis. Material and Methods: In this descriptive analytical study, two steps were undertaken. Firstly, a review of related articles and existing apps was conducted. Secondly, a researcher-developed questionnaire with a high reliability coefficient (Cronbach's alpha=0.97) was used to validate the identified information elements. Elements that scored at least an average of 3.2 (60%) on a 5 point Likert scale were deemed necessary data components for the design of an android-based mobile app catering to the self-care needs of rheumatoid arthritis patients. Results: Based on the analysis findings, experts identified crucial technical requirements for a mobile-based self-management system. The system should include features for documenting drug side effects and providing educational content and physical exercise videos. Additionally, these requirements encompass reminders for medication, doctor appointments, and physical activities. Priorities also include clinical information, lifestyle management, and patient demographics. Conclusion: Overall, the implementation of such a system has the potential to enhance patients' self-management skills, promote active involvement in self-care, and facilitate communication with healthcare providers.