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Educational Needs of Patients, Families, and Healthcare Professionals to Support the Patient Journey in Haemophilia Gene Therapy in the UK

Sara Boyce,Simon Fletcher,April Jones, Ruchika Kohli,Sarah Mangles,Min Ong,Debra Pollard,Sujan Sivasubramaniyam,David Stephensen,Nicola Stoner,Rashid Kazmi

Orphanet Journal of Rare Diseases（2023）

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Key words
Gene therapy,Haemophilia A,Haemophilia B,Health services needs and demand,Patient navigation
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