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The most important problems and needs of rasopathy patients with a noonan syndrome spectrum disorder.

Dagmar K Tiemens,Lotte Kleimeier,Erika Leenders,Ellen Wingbermühle,Renee L Roelofs,Barbara Sibbles,Floor S M Oostwegel,Eva Vroonland, Conny van Leeuwen, Hanneke Niessen, Paul Sonnega, Anniek Duursma,Michel A A P Willemsen,Jos M T Draaisma,Carina A C M Pittens

Orphanet journal of rare diseases（2023）

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Key words
noonan syndrome,rasopathy patients
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