Psychometric evaluation of a patient-reported outcomes instrument for congenital thrombotic thrombocytopenic purpura

Abiola Oladapo,Diane Ito,Ana María Rodriguez,Stephanie Philpott,Robert Krupnick,Veleka Allen,Christopher Hibbard,Marie Scully,Bruce Ewenstein

Journal of patient-reported outcomes（2023）

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Congenital thrombotic thrombocytopenic purpura,TTP,Rare diseases,Psychometrics,Patient-reported outcome measures,PRO,Clinical outcome assessment,Quality of life

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