The European health data space: Too big to succeed?

Luca Marelli,Marthe Stevens,Tamar Sharon,Ine Van Hoyweghen,Martin Boeckhout, Ilaria Colussi,Alexander Degelsegger-Márquez,Seliem El-Sayed,Klaus Hoeyer,Robin van Kessel, Dorota Krekora Zając,Mihaela Matei,Sara Roda,Barbara Prainsack,Irene Schlünder,Mahsa Shabani,Tom Southerington

Health Policy（2023）

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摘要

•In the current Proposal, the EHDS will not achieve its stated aims.•The EHDS will entail diminished safeguards for patients and citizens.•Health professionals are assigned unsustainable administrative burdens, detracting from patient care.•Health data sharing will not result in increased value for the public.•The proposal should be amended towards strengthening individual control and promoting collective good.

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