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Soliciting International Perspectives on an American National Research Agenda for Inherited Bleeding Disorders

Expert review of hematology(2023)SCI 4区

Natl Hemophilia Fdn | Donna DiMichele Consulting LLC

Cited 4|Views8
Abstract
Soliciting international perspectives on an American national research agenda for inherited bleeding disorders
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Key words
Community,global health equity,inherited bleeding disorders,international perspective,lived experience expert,National Hemophilia Foundation,research priorities,resource constraints
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要点】:本文探讨了美国国家出血性疾病研究议程的国际适用性,特别是针对遗传性出血疾病的患者及其家庭,通过社区驱动的国家研究蓝图,评估其他国家对这一研究方法的态度和适用性。

方法】:研究采用问卷调查的方式,收集了来自阿根廷、埃及、尼泊尔、塞内加尔、泰国和委内瑞拉的血友病专家及活跃在本地倡导和教育项目中的遗传性出血疾病患者和家庭成员的意见。

实验】:通过分析问卷调查结果,初步探讨了美国国家研究蓝图在其他国家的适用性,并认识到需要更广泛的咨询以得出更准确的结论。