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The Role of Participatory Action Research in Developing New Models of Healthcare: Perspectives from Participants and Recommendations for Ethical Review and Governance Oversight

C. Fogg, E. Lanning, J. Shoebridge,J. Longstaff,R. De Vos, K. Dawson-Taylor, A. Glanville-Hearson, D. Carpenter, S. Court,T. Brown,E. Heiden,A. Chauhan

Ethics, medicine and public health(2022)

Cited 2|Views13
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Abstract
•Practical guidance for using a Participatory Action Research (PAR) to develop and evaluate new models of healthcare is lacking.•Participants in a PAR study of a new model of community respiratory care highlighted ethical and governance challenges to implementation.•Recommendations for researchers intending to incorporate PAR methods in clinical research within the ethics and governance structures of the UK are proposed.
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Key words
Healthcare research ethics,Healthcare research governance,New model of care,Participatory action research,Plan-do-study-act
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