Burden of caregivers and out-of-pocket expenditures related to epidermolysis bullosa in France.

Emmanuelle Bourrat,Charles Taieb, Adrien Marquié, Patricia Causse,Christina Bergqvist,Angelique Sauvestre,Nathalia Bellon

Journal of the European Academy of Dermatology and Venereology（2023）

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摘要

EB places a considerable burden on families' daily lives. This burden is closely associated with OOP expenditures to manage EB which were on average 20 times higher compared with the French population.

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epidermolysis bullosa,caregivers

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