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The Long and Winding Road: Perspectives of People and Parents of Children with Mitochondrial Conditions Negotiating Management after Diagnosis

Long Janet C., Murdoch Children’s Research Institute,Hatem Sarah,Theodorou Tahlia,Catton Toni,Murray Sean,Braithwaite Jeffrey,Christodoulou John

Orphanet journal of rare diseases（2021）

Cited 8|Views6
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Key words
Qualitative research,Rare disease,Management,Consumer experience,Mitochondrial
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