Development of National Consensus Statements on Food Labelling Interpretation and Protein Allocation in a Low Phenylalanine Diet for PKU British Inherited Metabolic Diseases Group (BIMDG) Dietitians Group , Sharon Evans , Suzanne Ford , Sarah Adam , Sandra Adams , Jane Ash , Catherine Ashmore , Gillian Caine , Rachel Carruthers , Sarah Cawtherley , Satnam Chahal , Anne Clark , Barbara Cochrane , Anne Daly , Karen Dines , Marjorie Dixon , Carolyn Dunlop , Charlotte Ellerton , Moira French , Lisa Gaff , Cerys Gingell , Diane Green , Joanna Gribben , Anne Grimsley , Paula Hallam , Una Hendroff , Melanie Hill , Rachel Hoban , Sarah Howe , Inderdip Hunjan , Kit Kaalund , Eimear Kelleher , Farzana Khan , Steve Kitchen , Karen Lang , Sharan Lowry , Jo Males , Georgina Martin , Nicola McStravick , Avril Micciche , Camille Newby , Claire Nicol , Rachel Pereira , Louise Robertson , Kathleen Ross , Emma Simpson , Kath Singleton , Rachel Skeath , Jacqueline Stafford , Allyson Terry , Ruth Thom , Alison Tooke , Karen vanWyk , Fiona White , Lucy White , Anita MacDonald Orphanet journal of rare diseases（2019）
摘要
In the treatment of phenylketonuria (PKU), there was disparity between UK dietitians regarding interpretation of how different foods should be allocated in a low phenylalanine diet (allowed without measurement, not allowed, or allowed as part of phenylalanine exchanges). This led to variable advice being given to patients.
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关键词
Phenylketonuria (PKU), Delphi method, Food labelling, Consensus, Phenylalanine exchanges
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