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Identity Theft, Deep Brain Stimulation, and the Primacy of Post-trial Obligations

The Hastings Center report(2024)

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Abstract
Patient narratives from two investigational deep brain stimulation trials for traumatic brain injury and obsessive-compulsive disorder reveal that injury and illness rob individuals of personal identity and that neuromodulation can restore it. The early success of these interventions makes a compelling case for continued post-trial access to these technologies. Given the centrality of personal identity to respect for persons, a failure to provide continued access can be understood to represent a metaphorical identity theft. Such a loss recapitulates the pain of an individual's initial injury or illness and becomes especially tragic because it could be prevented by robust policy. A failure to fulfill this normative obligation constitutes a breach of disability law, which would view post-trial access as a means to achieve social reintegration through this neurotechnological accommodation.
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Key words
deep brain stimulation,traumatic brain injury,obsessive-compulsive disorder,personal identity,identity theft,disability rights,research ethics
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