Patient and public involvement in pragmatic trials: online survey of corresponding authors of published trials.

Shelley Vanderhout,Pascale Nevins,Stuart G Nicholls,Colin Macarthur,Jamie C Brehaut,Beth K Potter, Kate Gillies,Beatriz Goulao,Maureen Smith, Alicia Hilderley,Kelly Carroll,Anne Spinewine,Charles Weijer,Dean A Fergusson,Monica Taljaard

CMAJ open（2023）

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摘要

Nearly half of trialists in this survey reported conducting PPI and listed several benefits of doing so, but researchers who did not conduct PPI often cited a lack of requirement for it. Patient and public involvement appears to be significantly underreported in trial publications. Consistent and standardized reporting is needed to promote transparency about PPI methods, outcomes, challenges and benefits.

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关键词

pragmatic trials,public involvement

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