Getting It Right: How Public Engagement Might (and Might Not) Help Us Determine What Is Equitable in Genomics and Precision Medicine.

Click to increase image sizeClick to decrease image sizeThis article refers to:Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical CareThe Promise and Reality of Public Engagement in the Governance of Human Genome Editing ResearchIs It Just for a Screening Program to Give People All the Information They Want?Bounded Justice, Inclusion, and the Hyper/Invisibility of Race in Precision MedicinePromoting Equality in the Governance of Heritable Human Genome Editing through Ubuntu: Reflecting on a South African Public Engagement Study ACKNOWLEDGMENTSThe authors thank their colleagues at NIH for providing critical feedback on this commentary.Additional informationFundingThis work was supported in part by the Intramural Research Programs of the National Human Genome Research Institute.