Science and its stakeholders We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine Amy Dockser Marcus Riverhead Books, 2023. 256 pp.

Science (New York, N.Y.)(2023)

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摘要
Patients' families became research partners in a quest to understand a rare genetic disease.
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关键词
scientists,science,doctors,medicine</b>,stakeholders
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