Quality of Life Assessment Methodology in TeNDER project.

TeNDER is a multi-sectoral project funded by Horizon 2020, the EU Framework Programme for Research and Innovation, developing an integrated care model to manage multi-morbidity in patients with neurodegenerative and cardiovascular diseases, with the aim of increasing the quality of life. In order to achieve this general goal, TeNDER consortium is performing five large-scale pilots in order to test services targeting patients, their caregivers, and care professionals. The present document covers the background of the TeNDER quality of life (QoL) assessments, including the methods, contents, aims, and objectives, and the significance of the QoL assessments in the project. It contains the QoL assessment questionnaires for participants (patients, caregivers, professionals) elaborated by the TeNDER consortium. The objectives and key performance indicators (KPI) related to QoL in the TeNDER project guided the QoL indicators' creation. The standardized 36-Item Short Form Health Survey questionnaire has been selected for the assessment of HR-QoL of patients involved in the project, by comparing the pre-piloting and the post-piloting assessment. Moreover, other aspects of QoL of the stakeholders and the working conditions of health/social professionals involved in the project are assessed with TeNDER user experience questionnaires (a group of questionnaires created by the consortium).