Development of a core outcome set for quality of life for adults with drug-resistant epilepsy: A multistakeholder Delphi consensus study.

Sharon Chiang,Robert Moss,John M Stern,Inna Hughes,S Andrew Josephson,Jennifer R Pearce,Brandon E Kopald,Anup D Patel,Vikram R Rao

Epilepsia（2023）

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摘要

Using patient-centered Delphi methodology, this study defines the first COS for QOL measurement in clinical practice for adults with drug-resistant epilepsy. This set highlights the diversity of factors beyond seizure frequency and severity that impact QOL in epilepsy.

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关键词

Delphi technique,core outcome set,drug-resistant epilepsy,epilepsy,patient-centered outcomes,quality of life

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